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  #1  
Old 03-13-2009, 03:00 PM
princesshannon princesshannon is offline
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Default Toddlers/youngsters with food fears/aversions and no dx

i just wanted to throw this out there to see if anyone was in the same or a similar boat...

we have no official diagnosis b/c, well, i'm not sure they know what to call it.

after a round of shots, tooter ran a very high fever for a week and then got a flu like illness (the illness was separate from the shot as evidenced by the massive quantities of sick that came out of all of us!) he reacted much worse. we got better within 48 hours but he had severe vomiting and dia. for over 8 weeks straight. he stopped eating, talking, and playing. his stomach severely cramped every time anything went into his mouth. he tolerated breast milk, luckily he had only night weaned at the time so we could increase supply and have him be exclusively breast fed again. once the cramping and dia stopped, the other symptoms, not eating/talking/playing stayed. he started playing again first and then a bit of vocalization. it took almost a year for him to begin to eat again. now we have a very small list of foods that he seems to think are safe.

the developmental therapist comes every week to teach us reflex exercises that can help turn off his "over active" fight or flight responses to food. i guess it is helping some. we had speech, but i can't afford to drive an hour one way to the therapy place three times a week, so we are interviewing home care speech therapy places now to replace that with home care. he has also been referred for OT.

i know, a novel, but i am a little frustrated and fearful today...i wish he would eat and that he felt safe to eat. i'm sad for him that it seems like he is always on guard, even at home.
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  #2  
Old 03-13-2009, 09:01 PM
Naturallia Naturallia is offline
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We have the opposite problem. Sorry. But I empathize with yoru frustration over our children's eating habits.
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Old 03-13-2009, 09:41 PM
aundy aundy is offline
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what are some of the things he will eat?

maybe try different ways to present the foods he will eat so that other foods are incorporated and will help him learn to eat more. what does he drink? I need more info on what he does eat to help you find ways for him to eat more

in the meantime ... lots of prayers and positive thoughts for you and him
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Old 03-14-2009, 03:08 PM
princesshannon princesshannon is offline
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he will drink plain water from one of two kinds of cups and drinkable yogurts from the original container. on bad days if the container has been opened without him seeing you open it, he can't make himself drink it.

he will eat goldfish, zone double dark chocolate protein bars, freeze dried strawberries, sometime crackers, freeze dried mangoes, some french fries and recently added all bran flakes

we did have a breakthrough and he touched pizza, touched a grilled cheese, and ate about a third of a bread stick from little ceasar's pizza. i was absolutely stunned, it made me cry...pitiful, i know.

thanks for the prayers, it means a lot. most of my family and friends don't understand and just say stupid things like let him cry or he'll eat if he gets hungry enough...

we have been working so hard on the reflex retraining, but some days he is so reactive that he won't even let me do the foot flexes when he is sleeping...
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  #5  
Old 03-14-2009, 03:19 PM
aundy aundy is offline
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ok let me think on this bc I see how hard this is for you ... I am sure you are worried about nourishment do you have him on any kind of supplements? is he still breast feeding? what about other freeze dried fruits and veggies??? like the just tomatoes stuff?

I'll keep thinking on this ... I don't see a pattern for texture, visually or anything else ... do you notice a pattern at home of when he will eat???
  #6  
Old 03-15-2009, 05:11 AM
princesshannon princesshannon is offline
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he does still nurse twice a day and take one vitamin supplement. on days when he shows aversion to the protein bars, i can sometimes sneak vanilla whey protein into his liquid yogurt, but i'm scared he'll see me and stop trusting me with his food.

he won't touch any freeze dried foods except the strawberries and the mangoes of all things. we have tried peas, corn, carrots, apples, apple cinnamon slices, bananas, green beans, heck even mushrooms...i so wish he would eat something else...before he got sick he would eat stir fry, lasagna, etc...whatever i was eating.

i do see that changes in routine make for a day with fewer safe choices. today, for example, we had family in from out of town for ds1's birthday (13!). it was my mom, my brother 18, sister 15, and baby brother 14. he has been around them a million times, but it makes him wired, so we ate 1/3 of a protein bar, about 15 goldfish, and 1/2 of a yogurt...and that is it until he saw the corn chips (he has a corn sensitivity) and he ate 6 of them...now has 3 eczema flare patches. he only would nurse for about 5 minutes and took an hour and half to go to sleep.

i really appreciate you taking this seriously and being so helpful...most people just don't get it. i can't even get the reflex exercises done on him today because he is so wound up. i'm tempted to only go to their house from now on so that we can come home to a safe space that is quiet and undisturbed.

wow...a novel! sorry, its been a long day!
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  #7  
Old 03-15-2009, 06:35 AM
aundy aundy is offline
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I agree about only going to their house from now on ... my little one did not have these kinds of problems but did have other problems and if other people were here or we weren't home for bed or nap time ... it was hell in my house to get him to sleep ... if he didn't sleep he had a petit mal seizure ... so not anything like what you are going through but still i had to get really strict ... several people thought I was insane and said oh he can go to bed later ... or he can skip a nap ... i was like NO NO NO ... so yeah I get it

ok on the drinkable yogurt stuff ... add stuff when he is sleeping and put the lid back on
are the cups he drinks from clear or colored? if they are colored you can also put powdered stuff in that and the mix it when you add liquid ... for solids ... the only thing i can tell you is do you have scheduled meal times? do you have a set place for him to eat? does he have a favorite plate, bowl, etc? I would fix him a plate at each meal w/3 things on it ... at least one being something you know he will eat ... and just a small bit of other things you want him to try ... keep offering it ... eventually it will click ... i think ... I mean that get a divided plate, put one thing you know he will eat in the main compartment ... then in the other two compartments put a MINISCULE amount of something you want him to try ... don't force it bc I am sure you know he will just refuse and keep refusing ... but put it there so that he can touch it feel it play with it ... one day he might try it ... I would start w/plain rice or pasta in one slot and then some kind of veggie in the other ... maybe carrots, either fresh and cut into strips like shoestring fries or steamed ... if you think he might like the texture better ... you can try sweet potatoe or regular fries (we do sw. pot. fries here ... i cut them up ... then bake them in the oven for about 20 min on 350) ... keep offering the same food for a whole week ... then the next week try a different one ... just put it on his plate and tell him it is ok to not touch it but that you want him to get used to it in case he decides to eat it ... that is the best i have right now but i'll keep thinking on this one ... i would definitely though try to get some carbs in him and some more protein if you can
  #8  
Old 03-15-2009, 11:35 AM
princesshannon princesshannon is offline
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thanks so much. we do have set meal times, and he does sit at his place around the table with us. i will try sweet potato fries for him, he might actually eat them once he gets used to seeing them.

he uses a klean kanteen with a nuby lid on it, so i could mix and have tried with his water, but after a drink he can tell and gives up on his cup...
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  #9  
Old 03-15-2009, 11:37 AM
naughtymonkey naughtymonkey is offline
Hang on....there was thrusting?! And I missed it?!
Damn, I always miss the good stuff.
 
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I have a patient who did this. Not the exact same illness thing, but similar. Lots of food allergies, lots of problems with food leading to OCD type behavior and food refusal. Lots of anxiety. We actually have had her seeing a counselor and a psychiatrist. She's 4 now and medicated with prozac and ?abilify? (can't remember) and through the meds and the psychotherapy combined with some OT and ST she is starting to have lots of breakthroughs on her eating. We really had to get the anxiety and OCD under control before we could work well on the eating.
Just a thought.
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  #10  
Old 03-16-2009, 07:12 PM
princesshannon princesshannon is offline
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i'm hoping to find him an OT locally that has some experience with small children. they are at a shortage here.

thankfully all the fam is gone and we can get back to routine. i am concerned about the new baby coming. it isn't the best time to be expecting...we thought we had infertility issues and couldn't get pg w/o meds...hmmmm, i guess we resolved that? we are happy about the baby, but i am very worried about tooter and really want to focus on him to help him feel better!

i just love you guys...the other place...they wouldn't even respond to most of my special needs posts...i feel supported...and you have had some wonderful suggestions!
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super shannon, wife to big man 10/95, mom to the Rock Star formerly known as little man 3/96, tooter monkey 4/06 with five angels between, and princess rowdy formerly known as the pumpkin princess 4/09 (april is a good month for us...)

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  #11  
Old 03-17-2009, 02:26 AM
odentonmom odentonmom is offline
I enjoyed all that sex and the dirty talk
 
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That sounds really tough.

I would be very careful about mixing stuff in. My youngest DS has a congenital colon disease and had never shown and aversion to foods or drinks until I started mixing things in. His specialist wanted us to try large amounts of laxatives and pectin to try and get him to have bowel movements. I was mixing things in applesauce, pudding, yogurt and drinks when he was 1 1/2-2y. He realized that I was doing that and pretty much stopped eating and drinking. We went for almost 2 weeks where he would only drink 8-12 oz of fluid a day and would not eat anything. I had stopped mixing anything in, but he didn't want to try it. Finally, he started back eating again, but he would not eat applesauce, yogurt or pudding for almost a year.

I have made a few other attempts, but as soon as he notices something about the taste and acts worried, I stop. I am afraid of him doing that again. The downside is that we have not been able to make any progress toward finding a laxative routine that works for him. The only thing I can do is give him Miralax twice a day in chocolate milk. That is not enough to make him stool on his own, so he is still dependant on rectal irrigations every other day and that helps make those go easier.

I hope you find a solution for you LO.
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