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  #1  
Old 03-17-2009, 10:41 PM
JeDeeLenae JeDeeLenae is offline
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Default Cystic Fibrosis??

Does anyone have any experience with cystic fibrosis, diagnosing, treatment, etc?? My niece was checked into the hospital yesterday for FTT. She's almost 2 and weighs 17 lbs. So, they're testing and said it's most likely cystic fibrosis.
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Old 03-20-2009, 03:54 PM
Jess Jess is offline
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I'm a CF carrier, I have several cousins who had it. Good luck to your neice Let me know how it goes!
Sounds like CF with the age and weight. It greatly decreased the bodies ability to absorb necessary nutrients from the mega amounts of mucous. How are they just catching it now though?? Have you ever noticed her skin being salty?
Good luck, either way
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Old 03-20-2009, 04:01 PM
Heather Heather is offline
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My only experience was looking after CF patients in the ICU after their double lung transplants. My dh is working with a guy who had a double lung transplant for CF a couple years ago. He's doing really well.
I hope she doesn't have it, it sure not a nice disease, but if she does it seems like they've come a LONG way in treating it in the last 5-7 years.
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Old 03-20-2009, 05:43 PM
JeDeeLenae JeDeeLenae is offline
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Default

we got the results. It's not CF (thankfully) but it's a type of reflux. Food is going back into her stomach from her intestines. She's on some medicine and has already gained a few ounces.
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Old 03-20-2009, 05:59 PM
Heather Heather is offline
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Quote:
Originally Posted by JeDeeLenae View Post
we got the results. It's not CF (thankfully) but it's a type of reflux. Food is going back into her stomach from her intestines. She's on some medicine and has already gained a few ounces.

AWESOME!!!!
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Old 03-20-2009, 10:52 PM
Jess Jess is offline
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That is FANTASTIC NEWS!!!!!!!!!!!!!!!
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